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You’ve found us! In May 2025, we began trading as Nonacus Clinical Services to be better aligned with our sister company Nonacus. We’re the same team, offering the same accredited services. We just look a little different.

Hereditary Cancer Services: Consent

Gaining consent for testing is an important consideration for genomic testing, as the test results can have a life-changing impact not only for those being testing but also their families.

Prior to testing, Informed Genomics Limited (IGL), trading as Nonacus Clinical Services, will require consent. This ensures that those undergoing testing have been provided essential and appropriate information they need to make an informed choice as to whether the test is right for them.

Delivery of pre-test counselling can be delivered either

  • Directly by the health centre

or

  • By GCRAB registered Genetic Counsellors

Verbal, written or electronic consent will be taken following delivery of pre-test counselling.

Types of consent requested by Nonacus Clinical Services includes the following:

For testing of genetic material

It is important that the testing process, the test limitations and the impact of the result are understood. No sample processing or testing is possible without this consent

For storage of DNA/RNA etc.

It is routine practice to store material such as DNA for a period after testing, either by the test centre or returned to the referring site for local storage. Material may be required for future tests or for family studies. Stored material is used only in the context of the test consented for and not used for any other unrelated test unless separate consent has been granted.

This is optional and does not impact on testing taking place. Material will be stored for a minimum period and then discarded if consent for storage not agreed.

Refer to the storage guidance here for the length of time that Nonacus Clinical Services will retain material.

For stored DNA to be used for family studies

As testing can impact family members, consent to use DNA as a control in future family studies is sought.

This is optional and does not impact on testing taking place.

For stored DNA to be used anonymously for internal quality control/service improvements

Consenting to testing includes storage of material which may at times be used by Nonacus Clinical Services for a limited number of internal processes. This includes ongoing internal quality improvements, monitoring of test performance and service improvements, only for the test indicated at time of consent.

For personal and genomic data to be stored

Consent is required for data storage. The testing process generates genomic data which will be stored by the laboratory for a temporary period. All data will be kept securely by the laboratory and will not be transferred to any third party without permission.

Please see our data storage policy here and our privacy policy here.